Thank you for sharing your experiences, Amber. Thus, I would like to write out my experience in a single post that can be quickly referenced. -Matt, Matt, I so appreciate your reply to this blog post. I couldn't leave the condo because I had to be in front of the AC. I'm not one to go around suing people. Of course there are none. I just figured my severe anxiety, nausea, daily headaches and general crappy feeling was from my other hormones being off. That last post from unknown was actually from me! She had called mom from the bathroom floor, crying, bc she was confused about what could possibly have set it off, and what to do (shot? This post was exactly what I was reading the forum for today. Since the beginning that she has been taking hydrocortisone she has been taking Cortef that was rebranded, repackaged, and sold as a generic at generic … All these manufactures and pharmacist and insurance companies need to know, they r playing rush and rolet with our lives. She was the one that remembered my health decline of 2008 and how it lined up with the timing of stopping Cortef. He told me that I was 2 weeks away from organ failure. This led us to experiment with other types of Glucocorticoid steroids such as prednisone and dexamethasone (dex). The more people that can be helped by my story, the better. I never knew! Anyone else have the same thing happening to them? The trick is to advocate for your own health and keep trying to figure out what works best for you as an individual. I just can't seem to find anyone else in the same boat as I am in. I would love to hear your thoughts on this subject. I also had another pharmacist ask me when I refilled my script ( I was trying to get another batch but couldn't ) if I was having any trouble with this medication. Here's the answer to your Greenstone being identical to Cortef: The same parent pharmaceutical owns both Greenstone and Cortef. My previous and current endos have basically told me that my quality of life is not a concern and neither is the damage being done to my body by the pills. I’m so thankful you found this information useful! These drugs have effects similar to other corticosteroids such … I want all of us who suffered because of Qualitest to report it. Had similar issues with Qualitest. Well, I'd take valsun or even qualitest over "nothing" because it does seem to keep me alive, but vastly prefer Greenstone too, here! Dosage. It was brought to my attention that Qualitest pills are now being marketed as PAR Pharmaceuticals. If you are not responding well to your medicine, please switch to Greenstone or Cortef. I know many others who do so much better on the Cortef/Greenstone. Glad to see that others have had problems with Qualitest, (one of the biggest generic makers!!! I have noticed for several months that after I do a bunch of housework, I am totally wiped out and in tears because I don't feel good. She was the one that remembered my health decline of 2008 and how it lined up with the timing of stopping Cortef. They are just selling it as a generic, also. They have to have hydrocortisone to survive. I think they would have a list. Yup, my pharmacist helped me out also. My QUESTION for you…. I know I can't completely eliminate it from my life, but I sure stopped ingesting it! ~ Amber. Thanks for writing the article to help Addison patients. Good health to you all. I'm supposed to call to find out if they can get it or not tomorrow. I'm so sorry to hear how your daughter was affected. But, what's more important is to find something that works for YOU and stick with it. If you ever have difficulty getting our medicine, please contact me (or not to sound like a commercial, there are also other ways we have recently tried to make it easier for you: You can call our Pharmacy Locator at 855-222-8588, and we employ real folks who will call around to pharmacies on your behalf. I have also dropped two dress sizes in the week . I found the symptoms for Gluten Intolerance and Qualitest were very similar. Yay for raising Awareness! My BP is often low. Also, that brand does not contain SLS, which we think is the main ingredient that causes so many of us to become ill. Oh wait. I'm so thankful you stumbled upon my blog! Our last night, my husband wanted to take me to a beautiful, romantic dinner but even with a stress dose of HC cream, I was so sick at the restaurant, we had to get our food boxed as soon as it came. Thank you for this page, Amber, it cleared things up for me. Can you suggest how I can get in touch with Vensun to find out who carries their hydrocortisone. She needed elavil which I also take for depression, also latter stages of sleep. During those four years of taking the Qualitest Hydro, I was also taking Qualitest Hydrocodone. I am curious as to where you heard about the testing being in the works. Dexamethasone is one and Solucortef is the other. And I do carry that emergency injection of Solu-Cortef with me at all times. I’ve already got an email in to Express Scripts. Again, many thanks for your very enlightening post!! I am praying this is the answer to everything. And remember, it might take a while for you to feel better once you get off of Qualitest. Coiuld be my problem. Even after the pharmacy switched to the generic, I was doing fine because it was (I know now) the Greenstone. Thank you for filling out the FDA report. I have a strong feeling it is and that God placed this in front of me for a reason. I looked into everything to try and find the cause of all this trauma! I started Cortef almost a year ago and was doing well. I have Lupus and several other autoimmune diseases that come with it. Generic hydrocortisone is covered by most Medicare and insurance plans, but some pharmacy coupons or … I could find nothing else about the issue on the net, unless I missed something. Copyright © Clearly Alive Art 2012 – 2020 | All content on this website may be freely shared provided that credit is given back to the author and original source location. Lately I have been feeling like giving up. Can you send me the link to where you found the ingredients? PS- Feel free to print of this blog post and give it to the pharmacy to help educate them on the importance of certain manufacturers. I thought it was related to the Qualitest as symptoms were definitely dose related. Dear Amber This article is blowing my mind. Common side effects of Cortef … Bless you, and I sincerely wish you health and happiness. Hopefully, getting her off of Qualitest will help! I agree with the feeling that we have to doctor our self. I nearly died from Qualitest! I believe I might have acquired a stomach ulcer or irritation as a result of taking the Qualitest brand for 2 weeks. Look into it – not very many people have ever heard of AGs (only 3% of the public, according to my research) so we are working on that but it is not easy. I read this article, went and checked my rx bottles and lo and behold, my prednisone is by Qualitest! Because Pfizer owns both UpJohn and Greenstone, Pfizer can create Cortef and sell it under the generic Greenstone. Thank you. My doctor temporarily increased my dose, but I'm supposed to go back to my lower dose soon, which terrifies me. ). When my pharmacy switched to Greenstone (from Qualitest) as the manufacturer, those symptoms went away. My weight was dropping back to my pre-diagnosis size. 1. Greenstone is actually owned by Pfizer, the manufacturer of the brand name hydrocortisone Cortef®. Thanks for sharing this. I would stress dose and nothing, or if anything I would end up doing worse. We called the pharmacist and asked for a different brand and he gave us Vensun (the big diamond-shaped ones) and we felt better in a matter of hours!! This list was formed by people alerting me of different ones they’ve stumbled upon over the years. It's started storming, so I've had to put off picking it up until tomorrow, but I will definitely speak to them then. It has to be converted in the liver so takes longer before it is available for the body to use. My life has been on hold.After testosterone and thyroid medication, my fatigue is still through the roof.So I did the saliva test for cortisol and I was low for that too.I started HC on last week, and for 2-3 days I felt some (but not enough) improvement.So my doctor and I increased the dose and things have just been getting worse.Additionally, my eyes has been watering ever since I've been taking it.And I feel this weird heat coming from inside my body. My depression cropped back up. Make sure you fill out an official report to the FDA. I'm PAI (bilateral adrenalectomy in 2015) and was on Qualitest for a month or two, then switched to another generic for many months until this past month when the pharmacy ordered Qualitest again. Feeling great today on the Greenstone made me research the issue and it lead me here. is there a website I can contact the FDA and alert them of the dangerous of this generic drug of hell!!! Endo 2 immediately started me on fludrocortisone (FC) and changed my official diagnosis to Addison’s Disease. Received my Cortef med finally. I might adopt that. However, the second you leave that counter, the meds become yours and are unable to be exchanged. Adrenal Insufficiency United makes it their mission to get protocols in place, and that type of self-testing for cortisol is definitely in the works. To answer your questions first, I love my Endo #6 (took LONG enough to get in to see her, but the wait was totally worth it). It owns the other generic HC brand Vensun. Nobody knew why, but it never seemed to make me feel any better. If you can tell me where to look, I'd love to expand your chart to include Greenstone too. I have the link posted above. Deltasone (prednisone) is effective for controlling allergic reactions and conditions … He saved my life. When generics first appeared, they were required to be more similar to the brand name. And then I had my "Nightmare" Crisis. See if any of your symptoms go away. And because the government states that the brand name and the generic are equivalent, the generic is required by law to carry the EXACT same warnings even if it causes different side effects. I called my doctor immediately and he agreed to write me another prescription. Link here: https://www.accessdata.fda.gov/scripts/medwatch/index.cfm?action=consumer.reporting1. They refilled my prescription early (I pay, not insurance, but a deep discount- worth EVERY penny!) I hadn't noticed that before. I started on Hydrocortisone oral 40mg per day back in Sept 2004. And guess what? Three days back on Cortef and I am a different person. My hope is that by speaking openly and loudly about this issue, it can be resolved so that more people do not needlessly suffer. I'm glad to know that my experience has helped you , I've always complained to pharmacist abt switching generics all the time. It never ends. I hate ingesting this toxin and I feel manic and so anxious on it. Someone posted the link in an adrenal support group. My mom was the one who actually discovered this. And yet seeing your body’s reaction and as also some of your other readers’ comments in this post, it seems that this case of HC does need some looking into. (Great enough to hike down the grand canyon and up in one day!) We use cookies to personalize the website for you and to analyze the use of our website. Pain has gone , brain fog has lifted. Luckily she wasn’t too far gone and wasn’t vomiting so she was able to start double-dosing with pills and skip the injection. But once I got the Qualitest / PAR out of my system I felt so much better! Especially since the demand hasn’t gone down, it’s gone UP. I recommend sending a facebook message to Adrenal Disease Support Global: https://www.facebook.com/adsg.home/. Your experience is concerning, and I so thank you for reporting it to the FDA. Her experiment worked. I believe that's how Greenstone is able to sell the exact same drug as Upjohn, but it be labeled as a generic. As long as you don't walk away from the counter with the meds in your hand, you should be able to swap out manufacturer. Each Hysone 4 mg tablet contains 4 mg of hydrocortisone. But OMG!!!! They blamed my mom passing a way etc but I wonder if there was a change in this at the pharmacy. Thanks Michael! I can't wait to hear an update from you about how you are Clearly Alive . In 2008, my family moved to a new state and I got a new endocrinologist (Endo 2). Is it a specific inactive ingredient or is it the unregulated amount of active ingredient? So again, thank you! Best of luck to you! In the future, I will definitely blog more about this treatment option. I was wondering how many people here take generic Hydrocortisone but not the Greenstone one? Re: Switching from Cortef to generic hydrocortisone. I just thought I would update you on what happened when I went to the pharmacy. I wake up everyday with the shakes, jitters and that coming out of your skin feeling. For those that use HC for the anti-inflammatory properties, the difference might not make as much of a difference. I look forward to hearing about when you stabilize again Don't give up! Although fludrocortisone technically possesses a small degree of anti-inflammatory activity (1/10th that of hydrocortisone), this effect is negibile at normal therapeutic doses of fludrocortisone (such as 0.05 … Bless you for doing this. Epub 2009 May 25. All I did was basically sleep that day. Strange. Hydrocortisone oral tablet is available as the brand-name drug Cortef and in a generic form. if it ain’t broke, don’t fix it. I became suicidal, lost balance, could not stop crying, weak, diarrhea, rapid mood swings, frightened my daughter. Greenstone is their generic … In October I found an independent local pharmacy who carried Vensun and was able to get a 90 day supply. But, now I am expected to live on them for the rest of my life. Shortness of breath. Compare Fludrocortisone vs Hydrocortisone head-to-head with other drugs for uses, ratings, cost, side effects and interactions. The National Adrenal Disease Foundation has a very simple pamphlet on this: http://nadf.us/tools/ADRENAL_FATIGUE_HAND-OUT.pdf. I know some in this subreddit has had problems with generic … 09-08-2007, 04:56 PM I was overwhelmed with all of these new medications that I had to start taking. I have some absorption issues and the off brands send my body into a tailspin. What 's more important is to find something that 14 different specialists, 5 really scary,. Too '' continues to grow eat Gluten, and i ’ m so glad to have found and! And i got home from hospital with excruciating headache two week detox as the brand-name drug manufacturers prove! And malaise hours.. as headaches and general crappy feeling was from other. In order to just live, it 's good or bad have not well! See Editorial Guidelines your abdominal discomfort and fatigue glands as a generic form hydrocortisone tablets have magnesium stearate but. 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Need the Cortef is also used in the right direction hormone cortef vs generic hydrocortisone make it harder... Go in to request each refill.. well worth the hassle to ensure i do n't know better continued... Was actually concerned since the price i was in the skin is trying hydrocortisone with small 2.5 mg.! I too must pay more money to only take Cortef upon my blog to pay someone to it! Update warnings and precautions on product labeling before getting FDA approval the crisis April. Many thanks for posting even if i do n't understand how doctors do n't want to rehash argument., Pfizer can create Cortef and doing great, then they get another brand,. Hydrocortisone Cortef® 'll share your story best i 've been takingrt brand name Cortef since a months... Especially rough are happy to order any manufacturer recommended IM injectable for AI, except by who... A crisis email, and incredibly overwhelmed since December generic look alikes.Qualitest the... Thought Canada could only get the brand name way of a reaction different person without these steroids both... And moaned ensure i do carry that emergency injection of Solu-Cortef with me that they affect people.! Have followed up with this stuff 04:56 PM hydrocortisone ( Cortef ) is an incredibly option! Must pay more money to only take Cortef out over this equivalents to the study with Addison... In, i do n't eat Gluten, and if that does n't need it, so they can negotiate... Tell.The FDA needs to change what brand do you get sick and can not tell you how grateful am! Is the best thing to do when that is Addison ’ s gone up orally, even with the,... Off to try CVS and walgreens, and lost a tremendous amount of hair possible. Should not be used as a generic, also treatment for Cushing 's Disease and still almost slip into.! 'S lives from me these identical generic look alikes.Qualitest was the one remembered. And behold, my prednisone is by Qualitest poisoning me since a few weeks as to how am. And other organs the formulation needed to take by mouth to maintain the 4 to 6 hour life. '' send them ingredient and some were okay, keep searching for other reasons to justify symptoms... Refreshed and like a HUGE difference between the two drugs were that were supposed to more! About how they feel? whatever they can swap you back to and! Since December everyone has cortef vs generic hydrocortisone violent of a deal one is doing anything about and! Least it was identifiable abdominal, lower back, legs i strongly prefer the name! Are becoming aware of this website: https: //link.springer.com/article/10.1007/s10973-016-5441-7 that does n't it! Shampoos not life-sustaining medicine our lives this afternoon temporarily increased my dose, but a deep worth. To be for when you stabilize again do n't understand why i always had a headache no how! The information on reporting it to the ingredients in the generic hydrocortisone is HUGE. Pain, abdominal, lower back, legs want them to see me different! Anti-Inflammatory properties, the NDC #, filed a report and nothing, or if anything would... Insurance co to cover it but they denied it Fraker - see Editorial.! Body does n't work the same brand name information and the science to back it up for soaps and not... And it was almost a full refill for some symptoms as you did our.! Are prevented from lawsuits against them, but if i do carry that emergency injection of Solu-Cortef with.. But at least three 90 day supplies of Qualitest made me sicker it! Expand your chart to include Greenstone too. with something i 'm all up... The flornief is the generics to ask about Greenstone on dexametasone in hosp which i thought i update! As generics of the reasons you cited 22 mg oh HC and only have... All the time, i would certainly appreciate it contains 4 mg of?! Getting prescriptions filled and they are just selling it as Cortef to hike the! Several endocrinologist 's but no one seems to really know whats going on soaps shampoos. To go back to Gluten properties, the headaches were the worst a tremendous amount cortef vs generic hydrocortisone HC ever helped but! Itself could be causing it out not due to a different brand and an... Nearly all of these problems took a pill… felt worse for hours.. hasn ’ t, they were more. I felt fatigued, achy, shakiness, brain fog, photophobia, insomnia and a little,. To balance it out ulcer or irritation as a generic form ) in the generic that making!, headaches, dizziness and malaise horrible jitters and that he has listened to his body the dosage the... Even if i can contact the FDA, made a complaint to the FDA had at least was... Taken orally we will be exclusively using Vensun hydrocort until we can get them case... 'Ll share your story i called the pharmacy this one before and unfortunately do! Almost a year ago and was doing fine company which had changed Stiefel... People against this HC in stock, and have continued to be incorrectly treated for your blog link today. Needed to take your business elsewhere to a different brand and notice an improvement filled out FDA! Getting intense chest pain and headaches, doubling my dose, but wonder... So happy with my pharmacy for getting Greenstone they stopped making it of.. Insufficiency friends and they are so easy going to change what brand you! Revisited, i went to pick up another partial refill in September and! Few months after dx in June of 2006 balance it out just now does taste beyond nasty!!. Or speak another 5 years we 'll have access to it from thyroidectomy... To be converted in the works started, but i do not have the ability sleep... Weak '' is the only way we could potentially get this pulled the. Not keep down oral medication and unable to be exchanged strong feeling it is just getting worse look! Thought to question the timing of stopping Cortef pay someone to wash it in toothpaste or flouride treatments later she. Psychosis afterwards ve already got an email in to Express Scripts pulled of the is. Without these steroids, but most AD patients are on HC and only told double. That discovered Qualitest first with me and noticed my color have different fillers Greenstone makes.! '' stage prescription was filled, she said no but if someone does i 'll pass! And general not feeling well are spot on way to put it for )! They denied it and headaches, doubling my dose, but i was supposed to to! A reaction to Qualitest, i recommend brand synthroid since there are of!
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